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Feature iops 3702 withheld data items#235

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Feature-IOPS-3702-Withheld-data-items
Open

Feature iops 3702 withheld data items#235
vickyjaiswal0308 wants to merge 5 commits into
mainfrom
Feature-IOPS-3702-Withheld-data-items

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@vickyjaiswal0308

@vickyjaiswal0308 vickyjaiswal0308 commented Jun 15, 2026

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Marking Data Items as Withheld
Where a data item is required for clinical interpretation but must not be disclosed to the patient (e.g. sex assigned at birth used for interpretation of results or genomic analysis), it SHALL NOT be replaced with a placeholder value such as “unknown” or “not stated”.
Instead, the original value SHALL be retained in the FHIR resource for clinical use.
Implementations MAY use security labels or element-level visibility annotations to support classification of such data items. Exclusion from patient-facing views SHALL be performed through implementation-defined disclosure rules applied at the time of data presentation.

@KazeemHamzat

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Keeping the PR for @omarisgreat contribution.

@omarisgreat

omarisgreat commented Jul 1, 2026

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I like the approach but is there any possibility we could align to DS4P extensions/codes, if appropriate? https://build.fhir.org/ig/HL7/fhir-security-label-ds4p/inline_security_labels.html

e.g. use the DS4P extension for the inline label and possibly use something like a core confidentiality code (e.g. using ActCode#TBOO, REDACT or NOPAT) for coding whether the information should be withheld. If not, we might need to take this to DA first to get agreement.

No inline label can then be the default, e.g. allowing patient disclosure

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3 participants